Do you have a favorite film about epilepsy? What in the film resonates most about your journey with epilepsy?

Recently, I sat in the optometrist’s office for an eye appointment. Lately, I have experienced an increase in ocular migraines. My left eye tends to swell up and then close after seeing an aura of color, usually in the dark blue, green, or sometimes yellow light. I admit I hadn’t gotten a new pair of glasses in six years. When I met the optometrist, it was wonderful. After describing my history, she informed me she did her thesis on epilepsy and migraines with colored lenses. Starting on my journey twenty three years ago, only a handful of doctors understood the benefits of colored lenses for people with photosensitive epilepsy and ocular migraines. One happened to be my optometrist’s mentor, my former opthlamologist also affected by epilepsy. He did a seminar on epilepsy and colored lenses. How cool is that?

Does the sun bouncing off the snow trigger your epilepsy? What steps do you take to help reduce sun blindness? 

Have you ever felt an increase of seizures during the winter season?  You are not alone! The drop in barometric pressure, lack of sunlight, and the darkness are some possible triggers. So, how do you manage when the winter season makes you miserable? 

Do you have a special journal to keep track of your seizure or do you use an app?

A rare type of reflex epilepsy,  tooth brushing epilepsy occurs by the act of brushing teeth either by using an electric or manual toothbrush. Certain spots in the mouth may be triggered by brushing teeth, a lesion or brain damage, or stimulation overload by the act of brushing too hard or simply brushing msy cause a seizure. How does one balance oral health and manage seizures? These articles are helpful on navigating the dental and neurological world. I highly recommend reading all of these.

Have you joined any new epilepsy communities? If so, where do you go to connect with others? 

Wishing you and your loved ones a healthy, happy, seizure-free New Year! Cheers to a great new year! 

Dear Friends:

Hope you have a seizure-free Thanksgiving this year. 

November is Epilepsy Awareness Month! 💜

Wishing you all a seizure-free Monday as your bodies adjust to the new time rhythm.